Bridging the Gaps: Developing resources and curricula for parents with disabilities and health care professionals June 4, 2024 at 11:15 am

Disability Studies has long noted that disabled persons are not often considered capable of sexual activity or even interested in sexuality. When they are, they are stereotyped as sexually deviant or at risk of sexual abuse, not as engaging in healthy sexual relationships (Pebdani & Tashijan, 2021). They are rarely thought of as potential parents (Friedman, 2022). They are not represented in sexual education materials taught in public education or information on pregnancy and childhood provided to young adults (Giles, Juando-Prats, McPherson, & Gesink, 2022). Information on the needs and desires of disabled persons carrying pregnancies to term and raising healthy children is sparse; several scoping reviews have noted this as a clear need for disabled persons (Pebedani & Tashijan, 2021).

Medical education often involves the diagnosis of DD but does not always include the care of people with DD. It also rarely involves the individualized care that many people with DD need; this is especially true for family planning and maternity care (Thompson, Stancliffe, Broom & Wilson, 2014). There is a need within the disability community for resources and assistance in making pregnancy-related choices, receiving accessible and responsive medical care, and obtaining the assistance and supports essential for parenting.

Key Learning Outcomes

Attendees at this session will be able to
1. Describe some of the barriers, gaps and needs related to pregnancy and parenting with a disability in AZ.
2. Learn about new resources and curricula developed to address needs and gaps related to parenting with a disability in AZ.
3. Learn about on-going collaborative efforts to support parents with disabilities.

Speaker(s)

Farkas, Duncan, et al.
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