Tag: Parents with Disability

PATHS: Providing Accessible Training and Home Support for Parents with Intellectual Disabilities in Arizona

PATHS intends to improve access to high quality parenting support for Arizona parents with intellectual disabilities. Using a participatory approach, PATHS collaborates with and interviews home visitors and supervisors of evidence-based home visiting programs (EBHV) funded through MIECHV in the state of Arizona. This project explores the challenges and successes encountered by home visitors, aiming to highlight effective strategies and identify areas for improvement. This will lead to the development of supplemental and training materials. There is a limited research base in this area. More research is needed in order to support this population. This session will illustrate the need for more research and support for parents with intellectual disabilities as well as present PATHS supplemental materials and trainings for home home visitors in Arizona.

Key Learning Outcomes

1. Participants will gain an understanding of the general disparities found in research and practice of supporting parents with intellectual disabilities
2. Participants will learn about the PATHS project, its history, and its role in helping evidenced-based home visiting programs (EBHV) meet the needs of parents with intellectual disabilities. The future of PATHS will also be discussed.
3. Participants will be introduced to the supplemental and training materials created by PATHS to support EBHV programs meeting the needs of parents with ID.

Parent Panel: Lived Experiences Parenting with Disabilities

Historically, individuals with disabilities have seldom been subjects of research activity intended to establish foundations of parenting support. However, recent literature suggests that they experience pregnancy at the same rate as those without disabilities. These individuals experience parenting struggles the same as others do, additional to any issues resulting from their disability or its intersection with raising children. A panel of four parents will discuss their experiences raising children and navigating parenthood while having a disability as well as provide their perspective on the benefits of three new parenting programs and the most pertinent issues that need to be addressed. This panel will amplify voices of the disability community, something crucial to uncovering the most prominent issues in the lives of parents with disabilities.

Key Learning Outcomes

1) Understand some of the positive things about being a parent with a disability and the different perspectives being a parent provides
2) Understand how parents with disabilities can parent with appropriate supports
3) Leave with a wider knowledge of the barriers parents with disabilities face

Bridging the Gaps: Developing resources and curricula for parents with disabilities and health care professionals

Too little is known and understood about the needs of people with disabilities who are pregnant and parenting. Few resources exist to support and connect parents with disabilities to information and peer support. In addition, medical providers lack training and awareness of resources to address the needs of their patients with disabilities who are pregnant and parenting. A multidisciplinary team representative of lived experience and organizations within independent living, advocacy, direct services, and research utilize a collaborate approach to better understand the nature of needs, and then address identified barriers through the development of educational materials, trainings, and a peer support group. The team shares their process, findings, and developed resources.

Key Learning Outcomes

Attendees at this session will be able to
1. Describe some of the barriers, gaps and needs related to pregnancy and parenting with a disability in AZ.
2. Learn about new resources and curricula developed to address needs and gaps related to parenting with a disability in AZ.
3. Learn about on-going collaborative efforts to support parents with disabilities.

Working with Parents with Disabilities: An Overview for Social Workers and Social Service Providers

This session provides social workers and providers an overview on supporting parents with disabilities. First, we will briefly discuss the historical and modern treatment of parents with disabilities in the US, including eugenics laws, laws allowing termination of parental rights based on parental disability, lack of services supporting parents with disabilities, and the overrepresentation of parents with disabilities in the child protection system. Next, we will discuss new models for working with parents with disabilities, including parent training, parent centered planning, peer navigator programs, and parent support programs. Finally, we will provide tan overview of best practices in supporting parents with disabilities and resources for further information. This session will draw on the growing international research and advocacy efforts related to supporting parents with disabilities.

Key Learning Outcomes

1) Attendees will understand the current and historical context related to parenting with a disability in the United States, including eugenics laws, state laws that have parental disability as a grounds for termination of parental rights, and the current overrepresentation of parents with disabilities in the child protection system.

2) Attendees will be familiar with a variety of new models for working with parents with disabilities, including parent training, parent centered planning, and peer navigator models.

3) Attendees will be familiar with best practices for social workers and social service providers in supporting parents with disabilities.

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